Croeso i HAHAV Welcome!

Hospice at Home Aberystwyth Volunteers

We are a volunteer led community service for North Ceredigion, West Wales. Our teams provide practical help, social care and friendship for people with chronic, life limiting illness and those needing end of life support. HAHAV’s services are currently delivered to clients and their carers in their own homes and in future, additional activities will be held at our new Plas Antaron day centre.

Established since 2015, we are a registered charity. Please explore our website to discover more about our work, how to volunteer and how to contact us. Thank you for your interest!

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About Us

HAHAV’s mission is to provide practical, social, and emotional support to patients who are living with advanced, and progressive illness and to their carers, in the comfort of their own homes, and, in future, at our Plas Antaron day centre.

HAHAV was established by volunteers in 2015. The initiative is led by HAHAV’s chair, Dr Alan Axford, OBE, former Medical Director of Hywel Dda University Health Board (HDU). We work with a wide range of relevant organizations including HDU; GPs; Severn Hospice; Carers Wales; Ceredigion Council; Community Councils and Welsh Government.

Referrals to HAHAV come from GPs and hospital palliative care staff but can be from social services/church/voluntary organizations plus some self-referrals or by patient contacts.

HAHAV volunteers come from all walks of life. They are all trained and DBS checked. They work with GPs, district nurses and other third sector and social care professionals providing palliative care and signposting locally. Our ‘sitting’ services to patients at home include companionship, shopping, driving, gardening, dog walking and respite for carers. Plus monthly ‘Living Well’ groups, and weekly open coffee mornings.

HAHAV’s success since 2015 has been founded on goodwill and local fundraising, plus unstinting efforts by our volunteers, some 80 of whom have delivered over 45,000 hours work and to date HAHAV has assisted over 275 cases at home (about 70 each year).

HAHAV’s charity shop was established in Aberystwyth in July 2015. Since that time 40 volunteers have contributed more than 18,000 hours sorting, pricing and selling donated goods. All monies raised are used to fund HAHAV work in the community.

We have also received support from local churches and community groups – Aberystwyth Business Club; League of Friends; Penparcau Hwb; Merched y Wawr; WI; Young Farmers Clubs; Rotary/Inner Wheel; Round Table/41 Club/Ladies Circle/Tangent; Soroptomists; student unions. Plus endorsements from Aberystwyth/Lampeter universities; Coleg Ceredigion.

Plas Antaron

HAHAV’s centre at Plas Antaron, Southgate, Penparcau is HAHAV’s new headquarters. Plans are in hand for it to be a day respite centre. Together with partners we hope to offer a range of services and the centre will also be a training base for Hywel Dda University Health Board’s community palliative care team.

Plas Antaron will mean enhanced cooperation, resource optimisation and better integrated services to clients, their family and carers. As well as partnership working with HDU Health Board/Severn Hospice, our centre will offer other agencies opportunities to provide sessions on advanced care planning and bereavement support.

Complementary services/therapies will be provided by volunteer therapists, teachers, (art, reflexology, aromatherapy, Reiki, massage) plus a coffee shop run by volunteers.

Due to COVID-19 Plas Antaron is not open to the public until further notice.

Volunteers

Volunteers are the backbone of the HAHAV charity. Our volunteers come from all walks of life, age groups and backgrounds. There are a number of different roles required by the HAHAV team. These include:

  • Sitters: they interact directly with patients, their carers and families in the patient’s own home.
  • Fund-raisers: they participate in a range of activities to publicise the charity and to support it financially.
  • Shop assistants: they help in numerous ways in the HAHAV shop at 14 Pier Street, Aberystwyth.
  • Administrative and IT supporters: they fulfil a range of functions necessary to keep a vibrant service running well.

After an initial expression of interest, each volunteer completes an application form and is invited to an interview.

All volunteers will be involved in an initial training programme and depending on their chosen role, they will be provided with continuing training, development, support and supervision.

Volunteer expectations of HAHAV

Volunteers expect to be:

  • treated with dignity and respect
  • participate in meaningful ‘work’ on behalf of the community
  • appropriately trained
  • given timely information
  • supported

HAHAV expectations of volunteers

HAHAV expects volunteers in return to be:

  • respectful
  • reliable
  • ethical
  • confidential

Email address for volunteers is hahavcord@aol.co.uk

Shop

Our shop at 14 Pier Street, is a well-loved Aberystwyth landmark, and an important source of funding for the service. The high standard of donations and the dedication of our volunteers have helped build the widely recognised reputation for excellence in both presentation and quality of offering.

Due to Covid-19 our volunteers have worked behind the scenes and achieved a return to trading which ensures the safety of our volunteers, customers, and supporters. Our hours of opening are increasing weekly and will hopefully soon return to ‘as normal as possible’ shortly. The constraints imposed, due to covid, on the handling and storage of goods mean that we are still unable to accept your donations of items. We are working hard to resolve the situation and hope to be able to resume in the not too distant future.

Frequently Asked Questions

What is HAHAV hospice care?

HAHAV’s hospice care aims to improve the quality of life and wellbeing of adult clients with a life-limiting or terminal condition. Our volunteers help people, including those on a cancer journey, to live as fully and as well as they can in their own homes and until the end of their lives, however long that may be.

How are people referred to HAHAV?

The majority of current referrals are people suffering from cancer but also include other life limiting illnesses (e.g. advanced cardio respiratory disease; degenerative neurological diseases). Referrals come from GPs and hospital palliative care staff but can be from social services/church/voluntary organizations plus some self-referrals or by patient contacts. Our services are available to adult clients of any age, religion or race.

Does HAHAV give grants or provide financial support?

No. We can only offer support in kind. However our volunteers aim to signpost clients to organizations that can perhaps help in this way.

How is HAHAV funded?

At present almost all HAHAV funds are raised from our charity shop in Aberystwyth and from donations by the general public, local organisations and charities.

Who are HAHAV’s partners?

HAHAV works very closely with local NHS staff, GP surgeries, social services and the voluntary organizations such as Hywel Dda University Health Board Palliative Care teams, Macmillan support, and Marie Curie Living Well Groups. We also maintain links with Cancer Research; Cancer Support; Tenovus; Age UK; Mind Cymru.

How can I volunteer to work with HAHAV?

We welcome new recruits from all walks of life for our register of unpaid volunteers who can help with a wide range of activities. We also provide relevant training and you can specify what sort of work you wish to be involved in and for how many hours or days per month you can work.

Volunteers are needed for our home sitting services such as companionship, shopping, driving, gardening, dog walking and respite for carers.

In our HAHAV shop, a rota of volunteers help sort, price and display a wide range of donated goods and sell them to customers.

In future we will need volunteers for maintenance, cleaning, gardening and to serve in our ‘drop in’ coffee bar and provide companionship at Plas Antaron.

We would also like to hear from you if you are interested in fundraising or indeed if you have any other talents or ideas you think could assist in delivering HAHAV’s mission. Please contact us by email at hahavcord@aol.co.uk

How is HAHAV governed?

HAHAV is a registered charity (Charity Commission No: 1160645) and a limited company (Companies House No: 09261439).

HAHAV is governed by a board of Directors and Trustees who are all unpaid volunteers. Together they are responsible for the strategic direction, regulation, financial probity and future development of the organization.

Chair

Dr Alan Axford OBE (Retired consultant oncologist; former Medical Director of Hywel Dda Health Board)

Board Members

  • Karen Axford (Retail director; qualified accountant)
  • Sue Balsom (Businesswoman; former High Sheriff of Dyfed)
  • Anthony Bates (Solicitor; Finance Director Aberystwyth Football Club)
  • Gerallt Davies (Independent financial consultant)
  • Irfana Jones (Retired solicitor)
  • Janet Jones (Former local school teacher)
  • Meurig Lewis (Retired bank manager)
  • Dr Donogh McKeogh (Consultant cardiologist Hywel Dda University Health Board)
  • Branwen Phillips (Former university facilities manager)
  • Syd Smith (Retired retail company director)
  • Mark Williams (School teacher; former MP for Ceredigion)

News

National Lottery awards £76.6k for new HAHAV Digital Hospice at Home Service in Ceredigion

September 2020

Aberystwyth and District Hospice at Home Volunteers (known as HAHAV), have been awarded £76.6k from the National Lottery Community Fund for a major digital project in the wake of the COVID pandemic.

Established by volunteers in 2015, HAHAV is led by Dr Alan Axford OBE, the former Medical Director of Hywel Dda Health Board. The charity’s volunteers provide practical, social, and emotional support to patients, who are living with advanced, incurable and progressive illness, and to their carers, in the comfort of their own homes. HAHAV is Ceredigion’s only hospice facility and volunteers work closely alongside local NHS Palliative Care teams as well as other local charities.

Until COVID, HAHAV volunteers were providing ‘sitting’ services to patients at home, offering companionship, shopping, driving, gardening, dog walking and respite for carers. However lockdown put a stop to these activities, with at risk people needing to shield carefully. Meanwhile plans have also had to be postponed for the launch of a new hospice day centre at HAHAV’s headquarters in Plas Antaron, Penparcau.

To date HAHAV’s funds have been raised from the charity’s shop in Pier Street, Aberystwyth and from donations by the general public, local organisations and charities. Now the Lottery money will see HAHAV setting up a Virtual Hospice at Home service (‘V-HAHAV’) to support some of the most vulnerable and isolated people in the community. As well as addressing the immediate limitations of COVID, the digital services will be the foundation of new long term, interactive outreach services to complement existing activities when they resume.

Commenting Dr Axford said, “We are immensely grateful to the National Lottery Community Fund for this help. The award will allow us to employ a Project Director and see the creation of a comprehensive, interactive content management website and broadcast system.

With these exciting new developments our ‘V-HAHAV’ will be able to provide important signposting and online one-to-one counselling, plus a range of new occupational therapy and relaxation activities for clients at home. These include art and yoga therapies and all sorts of online group participation, for example exercise, knitting or book clubs. plus chat rooms, live talks and demonstrations broadcast from Plas Antaron. We will also have a loan pool of digital equipment for use by HAHAV clients.

In future, ‘V-HAHAV’ will help us reach a wider audience of patients and their carers in Ceredigion and provide a comprehensive virtual hospice hub and information centre,".

Jobs

Facilities Manager for Plas Antaron, Aberystwyth

Full-time 12 months (in first instance), £22K p.a.

Hours: This is a full time post but family friendly hours negotiable (plus occasional out of hours as required)

This new post is funded by the Welsh Government Third Sector Resilience COVID Recovery fund.

Applications ASAP by Friday 14 May 2021. Please email full CV + letter of application to jobs@hahav.org.uk.

Job Description

This is a new role to help manage Plas Antaron, HAHAV’s Day Hospice Living Well Centre in Aberystwyth. The varied post involves working with the charity’s management team and volunteers to ensure the smooth, daily running of the Centre and maintenance of the building. Also arranging bookings and facilitating services for a wide range of clients and user groups, together with accurate record keeping and office administration.

Main Duties

  • Manage the upkeep and security of the building, equipment and supplies to meet all legal, health and safety standards
  • Ensure systems in place for daily opening and secure closing of Plas Antaron, including register of keyholders/emergency contacts
  • Administer timetabling of rooms and facilities, maintain up to date booking diary and keep records of visitors/numbers attending
  • Manage agreed budget and liaise with Finance reporting monthly on accounts and invoices for third parties
  • Maintain databases and records of all utilities contracts; troubleshoot associated problems and research/review renewals regularly
  • Ensure the Centre is clean and comfortable to the highest standards; manage volunteers to maintain grounds/garden and attend to minor building repairs (e.g. painting, decorating)
  • Engage and oversee external contractors for works outside the scope of volunteers
  • Work with HAHAV’s Retail Development Manager, Fundraiser, and other team members to create additional fundraising streams at Plas Antaron, including developing a small café; facilitating car park events and sales; fashion shows; fund raising dinners and catered events.
  • Ensure appropriate policies and procedures are followed at all times to preserve health and safety of visitors, staff and volunteers.
  • Ensure compliance with COSHH and infection control standards.
  • Be the competent person within the organisation for Health and Safety
  • Ensure risk assessments and safe systems of work are implemented and all relevant codes of practice in respect of hygiene, fire, health and safety etc. are implemented, maintained and recorded.
  • Achieve and maintain a level 5 score for Environmental Health Inspections of catering facilities.
  • Attend monthly meetings with the management team and Board members.
  • Undertake other duties as the Board may from time to time require.

Experience and Skills Required

  • Proven track record in a similar facilities management role.
  • Interest in compassionate community care
  • Ability to work within and lead a team
  • Excellent written and verbal communication.
  • Ability to plan, prioritise and execute a programme of work.
  • Ability to manage a devolved budget and work towards targets.
  • Good IT literacy, including using spreadsheets and databases.
  • Ability to build and maintain professional relationships.
  • Good interpersonal skills - approachable, professional and courteous, able to engage with people at all levels
  • Innovative ideas to maximise potential income at the Centre
  • Welsh language desirable but not essential

Terms and Conditions

12 month appointment (in first instance) to start June 2021 or ASAP thereafter.The funding is for one year but it is anticipated that the Facilities Manager Post may be extended, subject to the success of this new venture for HAHAV.

Fundraiser based at Plas Antaron, Aberystwyth

Full-time 12 months (in first instance), £25K p.a.

Hours: This is a full time post but family friendly hours negotiable

This new post is funded by the Welsh Government Third Sector Resilience COVID Recovery fund.

Applications ASAP by Friday 14 May 2021. Please email full CV + letter of application to jobs@hahav.org.uk.

Job Description

The Fundraiser is a new leadership role to work closely with HAHAV’s Board, staff colleagues and volunteers to research and deliver a fundraising programme for 12 months (in the first instance). A major focus will be the purchase of Plas Antaron as a Living Well Centre, plus the realisation of substantial general funding to sustain the charity’s expanding operations.

Main Duties

  • Research and develop income through major grants and other funding applications to public bodies and third sector organizations, trusts and charitable foundations
  • Develop a plan with agreed specific financial targets, reporting monthly to the Board on fundraising plans, applications and leads
  • Research and track funding opportunities, providing a timely schedule of upcoming new bids
  • Maintain and update a funding contacts database
  • Compile and write comprehensive funding applications (including cashflow projections)
  • Build unrestricted funds by developing income streams from individuals and major donors, including legacy giving and payroll giving by corporates
  • Create and develop a programme of local fundraising events including activities linked to HAHAV’s shop and other sponsored/promotional events
  • Liaise with relevant bodies e.g. WCVA, CAVO, National Lottery
  • Arrange advertising campaigns and publicise fundraising events and outcomes via press and social media channels
  • Undertake other duties as the Board may from time to time require.

Experience and Skills Required

  • Proven track record in a similar charity fundraising role
  • Experience of major grant proposal development and tender writing
  • Experience of fundraising from legacies and corporates as well as community events
  • Excellent written and verbal communication skills
  • Ability to plan, prioritise and execute a programme of work
  • Good IT literacy, including using spreadsheets and databases
  • Interest in compassionate community care
  • Ability to build and maintain professional relationships
  • Full current UK Driving licence

Candidate Profile and Personal Attributes

  • Ambitious and resourceful, able to take responsibility and work collaboratively with colleagues
  • Independent thinker with creative approach to fundraising
  • Ability to organise work time efficiently and prioritise effectively to meet deadlines and work under pressure
  • Good interpersonal skills - approachable, professional and courteous, able to engage people at all levels
  • Prepared to work flexibly when required
  • Welsh language desirable but not essential

Terms and Conditions

12 month appointment (in first instance) to start June 2021 or ASAP thereafter.There is a possibility for the Fundraiser to join HAHAV longer term depending on successful fundraising and related prospects at the end of 12 months.

Background information about HAHAV

HAHAV is a registered charity (Charity Commission No: 1160645) and a limited company (Companies House No: 09261439).

Our mission is to provide practical, social, and emotional support to patients, who are living with advanced, incurable or progressive illness, and to their carers, in the comfort of their own homes, and at our new Plas Antaron Living Well day centre.

HAHAV was established by volunteers in 2015. The initiative was led by HAHAV’s chair, Dr Alan Axford, OBE, former Medical Director of Hywel Dda Health Board. HAHAV is governed by a board of Directors and Trustees who are all unpaid volunteers. Together they are responsible for the strategic direction, regulation, financial probity and future development of the organization. The Board has secured strategic support from local NHS and statutory services, ensuring a joined up approach, including other charities and voluntary organizations.

HAHAV is volunteer led and some 80 volunteers have delivered over 45,000 hours work during the past five years, assisting some 275 family cases at home (average 70 p.a). Volunteers work with GPs, district nurses and other third sector/social care professionals providing palliative care and signposting locally. Our ‘visiting’ services to patients at home include companionship, shopping, driving, gardening, dog walking and especially respite for carers. Until COVID we held monthly ‘Living Well’ groups.

Our charity shop was established in Aberystwyth in July 2015. Since that time 40 volunteers have contributed more than 18,000 hours sorting, pricing and selling donated goods. The shop is normally a key source of funds and has recently opened again following COVID.

After four years it was clear that to extend HAHAV’s work to more long term or terminally ill people, and those on the cancer journey to recovery, a ‘drop in’ day Wellness Centre was needed. To this end plans were well advanced and at the end of 2019 we leased a suitable property, Plas Antaron, to build on our experience and develop more and support services for our community.

The challenges HAHAV has focused on to date (pre-COVID) are the extremely limited support services available locally to terminally ill people and their carers in the county. Ceredigion is the only local authority in Wales with no hospice centre. It is a geographically large, predominantly rural community (population c.74,000). HAHAV works with a wide range of relevant organizations including HDU; GPs; Severn Hospice; Carers Wales; Ceredigion Council; Community Councils and Welsh Government.

Contact

General

HAHAV Shop