Croeso i HAHAV Welcome!

Hospice at Home Aberystwyth Volunteers

We are a volunteer led community service for North Ceredigion, West Wales. Our teams provide practical help, social care and friendship for people with chronic, life limiting illness and those needing end of life support. HAHAV’s services are currently delivered to clients and their carers in their own homes and in future, additional activities will be held at our new Plas Antaron day centre.

Established since 2015, we are a registered charity. Please explore our website to discover more about our work, how to volunteer and how to contact us. Thank you for your interest!

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About Us

HAHAV’s mission is to provide practical, social, and emotional support to patients who are living with advanced, and progressive illness and to their carers, in the comfort of their own homes, and, in future, at our Plas Antaron day centre.

HAHAV was established by volunteers in 2015. The initiative is led by HAHAV’s chair, Dr Alan Axford, OBE, former Medical Director of Hywel Dda University Health Board (HDU). We work with a wide range of relevant organizations including HDU; GPs; Severn Hospice; Carers Wales; Ceredigion Council; Community Councils and Welsh Government.

Referrals to HAHAV come from GPs and hospital palliative care staff but can be from social services/church/voluntary organizations plus some self-referrals or by patient contacts.

HAHAV volunteers come from all walks of life. They are all trained and DBS checked. They work with GPs, district nurses and other third sector and social care professionals providing palliative care and signposting locally. Our ‘sitting’ services to patients at home include companionship, shopping, driving, gardening, dog walking and respite for carers. Plus monthly ‘Living Well’ groups, and weekly open coffee mornings.

HAHAV’s success since 2015 has been founded on goodwill and local fundraising, plus unstinting efforts by our volunteers, some 80 of whom have delivered over 45,000 hours work and to date HAHAV has assisted over 275 cases at home (about 70 each year).

HAHAV’s charity shop was established in Aberystwyth in July 2015. Since that time 40 volunteers have contributed more than 18,000 hours sorting, pricing and selling donated goods. All monies raised are used to fund HAHAV work in the community.

We have also received support from local churches and community groups – Aberystwyth Business Club; League of Friends; Penparcau Hwb; Merched y Wawr; WI; Young Farmers Clubs; Rotary/Inner Wheel; Round Table/41 Club/Ladies Circle/Tangent; Soroptomists; student unions. Plus endorsements from Aberystwyth/Lampeter universities; Coleg Ceredigion.

Plas Antaron

HAHAV’s centre at Plas Antaron, Southgate, Penparcau is HAHAV’s new headquarters. Plans are in hand for it to be a day respite centre. Together with partners we hope to offer a range of services and the centre will also be a training base for Hywel Dda University Health Board’s community palliative care team.

Plas Antaron will mean enhanced cooperation, resource optimisation and better integrated services to clients, their family and carers. As well as partnership working with HDU Health Board/Severn Hospice, our centre will offer other agencies opportunities to provide sessions on advanced care planning and bereavement support.

Complementary services/therapies will be provided by volunteer therapists, teachers, (art, reflexology, aromatherapy, Reiki, massage) plus a coffee shop run by volunteers.

Due to COVID-19 Plas Antaron is not open to the public until further notice.

Volunteers

Volunteers are the backbone of the HAHAV charity. Our volunteers come from all walks of life, age groups and backgrounds. There are a number of different roles required by the HAHAV team. These include:

  • Sitters: they interact directly with patients, their carers and families in the patient’s own home.
  • Fund-raisers: they participate in a range of activities to publicise the charity and to support it financially.
  • Shop assistants: they help in numerous ways in the HAHAV shop at 14 Pier Street, Aberystwyth.
  • Administrative and IT supporters: they fulfil a range of functions necessary to keep a vibrant service running well.

After an initial expression of interest, each volunteer completes an application form and is invited to an interview.

All volunteers will be involved in an initial training programme and depending on their chosen role, they will be provided with continuing training, development, support and supervision.

Volunteer expectations of HAHAV

Volunteers expect to be:

  • treated with dignity and respect
  • participate in meaningful ‘work’ on behalf of the community
  • appropriately trained
  • given timely information
  • supported

HAHAV expectations of volunteers

HAHAV expects volunteers in return to be:

  • respectful
  • reliable
  • ethical
  • confidential

Email address for volunteers is hahavcord@aol.co.uk

Shop

Our shop at 14 Pier Street, is a well-loved Aberystwyth landmark, and an important source of funding for the service. The high standard of donations and the dedication of our volunteers have helped build the widely recognised reputation for excellence in both presentation and quality of offering.

Due to Covid-19 our volunteers have worked behind the scenes and achieved a return to trading which ensures the safety of our volunteers, customers, and supporters. Our hours of opening are increasing weekly and will hopefully soon return to ‘as normal as possible’ shortly. The constraints imposed, due to covid, on the handling and storage of goods mean that we are still unable to accept your donations of items. We are working hard to resolve the situation and hope to be able to resume in the not too distant future.

Frequently Asked Questions

What is HAHAV hospice care?

HAHAV’s hospice care aims to improve the quality of life and wellbeing of adult clients with a life-limiting or terminal condition. Our volunteers help people, including those on a cancer journey, to live as fully and as well as they can in their own homes and until the end of their lives, however long that may be.

How are people referred to HAHAV?

The majority of current referrals are people suffering from cancer but also include other life limiting illnesses (e.g. advanced cardio respiratory disease; degenerative neurological diseases). Referrals come from GPs and hospital palliative care staff but can be from social services/church/voluntary organizations plus some self-referrals or by patient contacts. Our services are available to adult clients of any age, religion or race.

Does HAHAV give grants or provide financial support?

No. We can only offer support in kind. However our volunteers aim to signpost clients to organizations that can perhaps help in this way.

How is HAHAV funded?

At present almost all HAHAV funds are raised from our charity shop in Aberystwyth and from donations by the general public, local organisations and charities.

Who are HAHAV’s partners?

HAHAV works very closely with local NHS staff, GP surgeries, social services and the voluntary organizations such as Hywel Dda University Health Board Palliative Care teams, Macmillan support, and Marie Curie Living Well Groups. We also maintain links with Cancer Research; Cancer Support; Tenovus; Age UK; Mind Cymru.

How can I volunteer to work with HAHAV?

We welcome new recruits from all walks of life for our register of unpaid volunteers who can help with a wide range of activities. We also provide relevant training and you can specify what sort of work you wish to be involved in and for how many hours or days per month you can work.

Volunteers are needed for our home sitting services such as companionship, shopping, driving, gardening, dog walking and respite for carers.

In our HAHAV shop, a rota of volunteers help sort, price and display a wide range of donated goods and sell them to customers.

In future we will need volunteers for maintenance, cleaning, gardening and to serve in our ‘drop in’ coffee bar and provide companionship at Plas Antaron.

We would also like to hear from you if you are interested in fundraising or indeed if you have any other talents or ideas you think could assist in delivering HAHAV’s mission. Please contact us by email at hahavcord@aol.co.uk

How is HAHAV governed?

HAHAV is a registered charity (Charity Commission No: 1160645) and a limited company (Companies House No: 09261439).

HAHAV is governed by a board of Directors and Trustees who are all unpaid volunteers. Together they are responsible for the strategic direction, regulation, financial probity and future development of the organization.

Chair

Dr Alan Axford OBE (Retired consultant oncologist; former Medical Director of Hywel Dda Health Board)

Board Members

  • Karen Axford (Retail director; qualified accountant)
  • Sue Balsom (Businesswoman; former High Sheriff of Dyfed)
  • Anthony Bates (Solicitor; Finance Director Aberystwyth Football Club)
  • Gerallt Davies (Independent financial consultant)
  • Irfana Jones (Retired solicitor)
  • Janet Jones (Former local school teacher)
  • Meurig Lewis (Retired bank manager)
  • Dr Donogh McKeogh (Consultant cardiologist Hywel Dda University Health Board)
  • Branwen Phillips (Former university facilities manager)
  • Syd Smith (Retired retail company director)
  • Mark Williams (School teacher; former MP for Ceredigion)

News

National Lottery awards £76.6k for new HAHAV Digital Hospice at Home Service in Ceredigion

September 2020

Aberystwyth and District Hospice at Home Volunteers (known as HAHAV), have been awarded £76.6k from the National Lottery Community Fund for a major digital project in the wake of the COVID pandemic.

Established by volunteers in 2015, HAHAV is led by Dr Alan Axford OBE, the former Medical Director of Hywel Dda Health Board. The charity’s volunteers provide practical, social, and emotional support to patients, who are living with advanced, incurable and progressive illness, and to their carers, in the comfort of their own homes. HAHAV is Ceredigion’s only hospice facility and volunteers work closely alongside local NHS Palliative Care teams as well as other local charities.

Until COVID, HAHAV volunteers were providing ‘sitting’ services to patients at home, offering companionship, shopping, driving, gardening, dog walking and respite for carers. However lockdown put a stop to these activities, with at risk people needing to shield carefully. Meanwhile plans have also had to be postponed for the launch of a new hospice day centre at HAHAV’s headquarters in Plas Antaron, Penparcau.

To date HAHAV’s funds have been raised from the charity’s shop in Pier Street, Aberystwyth and from donations by the general public, local organisations and charities. Now the Lottery money will see HAHAV setting up a Virtual Hospice at Home service (‘V-HAHAV’) to support some of the most vulnerable and isolated people in the community. As well as addressing the immediate limitations of COVID, the digital services will be the foundation of new long term, interactive outreach services to complement existing activities when they resume.

Commenting Dr Axford said, “We are immensely grateful to the National Lottery Community Fund for this help. The award will allow us to employ a Project Director and see the creation of a comprehensive, interactive content management website and broadcast system.

With these exciting new developments our ‘V-HAHAV’ will be able to provide important signposting and online one-to-one counselling, plus a range of new occupational therapy and relaxation activities for clients at home. These include art and yoga therapies and all sorts of online group participation, for example exercise, knitting or book clubs. plus chat rooms, live talks and demonstrations broadcast from Plas Antaron. We will also have a loan pool of digital equipment for use by HAHAV clients.

In future, ‘V-HAHAV’ will help us reach a wider audience of patients and their carers in Ceredigion and provide a comprehensive virtual hospice hub and information centre,".

Jobs

Project Director

Aberystwyth Full-time 12 months (in first instance) c£35k

Please see information and Job Description below for this new post funded by the National Lottery People and Places (COVID Recovery) fund.

Applications by Friday 11 December 2020. Please email full CV+ letter of application to enquiries@hahav.org.uk

Background

The charity HAHAV (Aberystwyth Hospice at Home Volunteers) wishes to appoint a Project Director for an exciting, pioneering outreach development.

Working with HAHAV’s Director of Services, HAHAV’s Volunteer Coordinator and Hywel Dda Palliative Care team, the Project Director will help establish HAHAV’s virtual hospice service (V-HAHAV).

The project includes strategic responsibility for a bilingual portal providing long term illness and end of life information, advice and resources. The project will also facilitate an associated range of ‘Living Well’ online group participation activities/therapies (e.g yoga, art, book club).

Conceived in the light of COVID, in the longer term V-HAHAV will the basis of extending the charity’s reach and ability to help more clients in Ceredigion. It will also maximise the efforts of volunteers and other resources and become a core offering by HAHAV for a greater impact on vulnerable people in the community during and long after COVID.

Project Director role

This is a senior leadership position with the Project Director required for 12 months (in the first instance) to manage the development of HAHAV’s new online service. Also to help devise online content and coordinate associated broadcast activities.

Supported by HAHAV’s IT Sub Committee, the Project Director will commission a comprehensive, bespoke bilingual portal and interactive website for end of life related information, advice, and signposting to other agencies. This is not a technical position inasmuch as the website build will be developed by an external specialist digital agency following a tender process and with ongoing technical support. The project is about using technology creatively to help and engage HAHAV clients and partners.

HAHAV has installed a range of digital equipment for the charity’s HQ in Plas Antaron to allow broadcasts for group participation in activities by volunteer therapists and the occupational therapists employed by Hywel Dda University Health Board’s Palliative care team. The Project Director will coordinate and publicise a weekly programme of online events and activities.

There will also be a pool of other digital equipment (e.g. tablets, laptops, smartphones, dongles, VR headsets) to loan out to clients to use in their homes and with HAHAV’s visiting volunteers.

Further developments will include working with Aberystwyth University departments to create virtual reality content for HAHAV clients at home. Also with Hywel Dda consultants/departments wishing to deliver other outreach and group sessions at Plas Antaron (e.g Chronic Pulmonary Disease).

A huge opportunity exists to explore synergies with Aberystwyth University Centre of Excellence in Rural Health Research. Not least V-HAHAV will be a pioneering, exemplary model for hospice care in the community and as such will attract wide interest and support.

Responsibilities

  • Work closely with the Director of Services, Hywel Dda Palliative Care Unit and HAHAV volunteers
  • Research content and devise brief to commission and tender for a professional, interactive V-HAHAV website by external agency
  • Liaise with other hospices (e.g. Maggies) to research and learn about best practice online virtual hospice activities
  • Work with external parties including Hywel Dda University Health Board and other charities to establish links and signposting
  • Manage and update online content and information
  • Develop and schedule a programme of on-line, interactive engagement for HAHAV clients by engaging occupational therapists (e.g. art, yoga, mindfulness) plus volunteer led activity clubs (e.g book club, knitting circle)
  • Train volunteers to help clients with loan tablet/VR devices
  • Work with Aberystwyth University departments to create content and potential virtual reality sessions
  • Coordinate training session for HAHAV volunteers (by specialist advisers) on client usage of digital pool devices, including cyber security
  • Coordinate timetable and schedule of AV usage at Plas Antaron
  • Liaise with HAHAV shop and online activities to dovetail with V-HAHAV online presence
  • Manage HAHAV’s Social Media (Twitter, Facebook) to promote and publicise all HAHAV services and activities to target audiences

Administration

  • Establish and manage a project office including overseeing IT equipment and client loan pool of devices
  • Manage project tender process for website and digital agency services
  • Produce simple quarterly budget forecast and maintain accurate records of project finance
  • Monitor and produce regular reports on project progress for HAHAV’s board IT Sub-Committee in line with TNL grant requirements and timetable
  • Recruit and manage volunteers/Kickstarts for project if required

Candidate profile and attributes

  • Creative, ‘ideas’ person who is very organized and can deliver practical results
  • Experience of devising content for websites and enthusiastic use of social media
  • Self-starter with ability to initiate and trouble shoot as necessary
  • Excellent communicator able to inspire and engage wide range of people and talent
  • Team player - willingness to ‘muck in’ at all levels
  • Interest in future fundraising would be especially helpful
  • Welsh language desirable

Terms and Conditions

12 month appointment (in first instance) to start January 2021 or ASAP thereafter.

Full time: (37.5 hours per week)

Holidays: 28 days including Bank Holidays.

Salary: c£35k

There is a possibility for the candidate to join HAHAV longer term on successful delivery of the project at the end of 2021.

Secondment from current employment is an option for the right candidate wishing to broaden their career experience.

Further background information

HAHAV Online – our virtual hospice service will include:

  • On-line counselling and emotional support including confidential client referral for access to one-to-one online counselling support with trained and trainee therapists
  • Counselling service for front line NHS staff emotionally affected by COVID
  • Signposting to specialist services and local support such as the Hywel Dda Palliative Care Team, Macmillan support, Marie Curie Living Well Groups etc
  • Downloadable content providing general advice and support for dealing with emotional stress, such as anxiety, depression, mood swings
  • Group support sessions for specific emotional issues and or themes (facilitated by therapists)
  • Webinars and podcasts plus guest TED type style talks from complimentary therapists with tips and advice
  • On-line complimentary therapy support including downloadable relaxation; visualization exercises and meditations/mindfulness practices
  • Accessible gentle based physical exercise activities (e.g. yoga, Tai Chi) including group or individual sessions
  • Self-massage routines for clients in the comfort of their own homes
  • Communication and messaging service for clients and volunteers to share ideas, experiences and make connections
  • Hosting space for training of volunteers and palliative care teams
  • Hosting space for Living Well Groups to meet regularly and to download guest speaker talks
  • Recruitment portal for new HAHAV volunteers especially with digital and creative skills to widen and diversify our current volunteer profile
  • On-line art therapy services to support
  • Online gallery (with client permission) to display/talk about their art work
  • Online exhibition space to encourage, display and commission artist in residence work and development of on-line touring exhibits and exhibitions to share with other related organisations and websites
  • Other online topics and links to include symptom management and planning; communication with family and friends; self-care

How HAHAV is structured and run

HAHAV is a registered charity (Charity Commission No: 1160645) and a limited company (Companies House No: 09261439).

Our mission is to provide practical, social, and emotional support to patients, who are living with advanced, incurable and progressive illness, and to their carers, in the comfort of their own homes, and at our recently leased Plas Antaron day centre.

HAHAV was established by volunteers in 2015. The initiative was led by HAHAV’s chair, Dr Alan Axford, OBE, former Medical Director of Hywel Dda Health Board.

HAHAV is governed by a board of Directors and Trustees who are all unpaid volunteers. Together they are responsible for the strategic direction, regulation, financial probity and future development of the organization. The Board has secured strategic support from local NHS and statutory services, ensuring a joined up approach, including other charities and voluntary organizations. A sub-committee of the board is responsible for IT development and associated fundraising.

HAHAV is volunteer led and some 80 volunteers have delivered over 45,000 hours work during the past five years, assisting some 275 family cases at home (average 70 p.a). Volunteers work with GPs, district nurses and other third sector/social care professionals providing palliative care and signposting locally. Our ‘sitting’ services to patients at home include companionship, shopping, driving, gardening, dog walking and especially respite for carers. Until COVID we held monthly ‘Living Well’ groups.

Our charity shop was established in Aberystwyth in July 2015. Since that time 40 volunteers have contributed more than 18,000 hours sorting, pricing and selling donated goods. The shop is normally a key source of funds but it has been closed during COVID.

After four years it was clear that to extend HAHAV’s work to more terminally ill people, and those on the cancer journey to recovery, a ‘drop in’ day hospice/wellness centre was needed. To this end plans were well advanced and at the end of 2019 we leased a suitable property, Plas Antaron, to build on our experience and develop more and better end of life support services for our community.

The challenges HAHAV has focused on to date (until COVID) are the extremely limited support services available locally to terminally ill people and their carers in the county. Ceredigion is the only local authority in Wales with no day hospice centre. It is a geographically large, predominantly rural community (population c.74,000).

HAHAV works with a wide range of relevant organizations including HDU; GPs; Severn Hospice; Carers Wales; Ceredigion Council; Community Councils and Welsh Government.

Referrals to HAHAV come from GPs and hospital palliative care staff but can be from social services/church/voluntary organizations plus some self-referrals or by patient contacts.

Plas Antaron

From January 2020, Plas Antaron, a former small hotel, became the home for HAHAV with offices; rooms for counselling patients; respite/activity spaces/garden; training facilities for volunteers and local NHS palliative care teams. A range of programmes and activities and a formal launch planned for Spring 2020 but all of this was halted from mid-March because of the Coronavirus pandemic.

HAHAV’s response to COVID and the new Digital Project

HAHAV clients, their carers and many HAHAV volunteers (most aged 65+) are at high risk of COVID. Therefore our charity cannot currently continue with our volunteer led ‘Hospice at Home’ services out and about in the community. Alongside the Hywel Dda University Health Board Palliative care team, HAHAV volunteers normally provide social, emotional and practical support to cancer patients and those with life limiting or terminal conditions. These clients are some of the most vulnerable, isolated and frightened people in our rural community.

In addition to staying in contact with current clients, the need for HAHAV ’s ‘hospice at home’ services is likely to expand as the backlog of terminally ill patients become diagnosed following delay to GPs and hospital follow up services during COVID.

Demand is also likely to increase for HAHAV help amongst survivors of COVID who may suffer long term, life limiting complications from the virus. Also bereavement counselling is needed to support those who have experienced the loss of family or friends to COVID.

Ceredigion is a very rural county with no other hospice service. As well as HAHAV’s existing clients currently on the cancer journey or facing life limiting conditions, the county is expected to see a backlog of newly diagnosed cancer patients post COVID. Ongoing COVID restrictions and any second wave will also undoubtedly increase the need and demand for HAHAV support services to cancer patients and their carers.

HAHAV’s new Digital Project will enable HAHAV volunteers to carry out our ‘Hospice at Home’ services in new and different ways during the on-going COVID pandemic and beyond in order to maintain support within the communities we serve.

HAHAV’s Digital Project will help us reach a wider audience to support existing and new patients and their carers. These new developments will allow HAHAV to provide important signposting, online counselling and provide a range of new occupational therapy and relaxation activities that can help clients in their own homes.

The loan of HAHAV equipment and our volunteer ‘tech buddies’ will also help clients and carers (especially older ones) become aware and more confident using wider online activities to help them become more connected and remain independent – for example using Facetime, What’s App, Facebook and local shops delivering to them.

As well as addressing the immediate limitations of COVID, the provision of these new online and digital services will be the foundation of long term, additional hospice benefits to our community.

Retail Development Manager

Full Time & Permanent - £21,892 to £24,157 (NHS Band 4 scale)

HAHAV Hospice at home in Aberystwyth is looking for a dynamic, self-motivated team player to head up our retail operation and work with our volunteers to grow and develop new initiatives, as well as increase profits from our existing shop.

This is an exciting and unique opportunity in charity retail, allowing you to help define the future of HAHAV retail and play a key role in building its funds and activities for the future.

You will have:

  • First class interpersonal skills
  • Respect for and understanding of the contribution of volunteers
  • A good knowledge of charity retail
  • A strong interest in developing online sales
  • The ability to work on your own initiative
  • The ability to work strategically as well as operationally to drive the business forwards

For more information and to apply go to: https://www.thecharityretailconsultancy.co.uk/services/vacancies/

Contact

General

HAHAV Shop